Here in room 3C5, life goes on as usual, I get my regular 6 hour interval heel poke and we alternate my regular food and special med food. So far we're still on course for my sugars to be reduced to zero. Speaking of which, we just dropped it to 2.5 ml per hour and my first blood test came back with a glucose level of 5.3! I'm doing great!
Dad has been learning the procedures for my feeds. So far he is proving that nurses deserve a great deal of credit for the fantastic job they do. Dad has spilled some formula, clogged the feed bag, and let air enter the line twice. He is learning but still needs an adult to help him out.
I have been tolerating my feeds better now and only spit up a little bit. My mom and I are working on ways to make this easier on me and she's taken to wearing her black vest as a protective coating while she pats my back to burp me. She also sits me up regularly to make sure I get some different positions in during the day. She's taking such great care of me I can't imagine not having her around! Can't wait to take her home with me!
My mommy took a picture of my Broviac site to make sure we have something to compare too next week, as the nurses only clean the site once a week. We need to make sure that it doesn't get infected!
We had a visit tonight from Emerson's parents saying that they were going to have a photographer in on Monday who is building a portfolio. They offered to get us on her list of kids to photograph. We'll get some nice pics and a CD for free! Should give us way more content to send up to the site.
Tomorrow is also a busy day, we'll keep dropping the glucose and I have a bunch of family showing up! Also, mom wants to do the laundry so I have some clean sleepers. I have a tendency to soil them almost as soon as a new one goes on.
More on my sugars tomorrow, keep your fingers crossed!
No comments:
Post a Comment