Thursday 3 January 2013
Tuesday 1 January 2013
New Year's resolutions
Oh Wow! Where do I start! (As an aside I totally forgot my login password! An indication that it has been too long without an update).
Physiotherapy:
I started up again at Kidsability for Physio. This time around I received a therapist from the Waterloo location, Catharine. She has been working on getting me to bearcrawl up a ramp and to squat, and also to get me to move my feet in a forward propelling action without holding onto anything. I started walking a few steps out from the wall to the waiting arms of Mommy or Daddy.
Now I can basically cross a room, however I need to be enticed by a reward and also be able to end in Mommy or Daddy's arms still.
My Goals: Bearcrawl up the ramp, squat, stand on my own and walk on my own.
Texture Therapy:
I have attended 3 sessions at Blue Balloon, since we last spoke. My homework has been body compressions and face petting towards my mouth to break through my defenses. So far we have been lax on this homework... My Mommy has sent me to Kidsability with Lori (my OT) to focus on playing with different textures. Lori has introduced me to hand painting (which I do not like, but I love squeezing the bottle of paint onto the paper!). Watching her play with Jello and getting her to put pieces of Jello in dolls eyes! I have also put my farm animals in Jello, and like to clean them off with a damp cloth when they get " Jello dirty"! My favourite game to play with Lori is trying to find the "bugs" in dry lentils!
My Goals: to trust enough textures to start getting my hands in them without feeling distressed.
Speech:
I currently have no words. However, I make sure that my point gets across in other ways!
I finally had my speech assessment at Kidsability where it was noted that my receptive language far surpasses any of my expressive skills. I have been placed on a wait list for this program called "Target Words". This is a once a week for 6 weeks program where my parents get trained in techniques to train me.
My Goals: To speak
Feeding:
Over the past 2 months the goal for me has been to put on weight. This was achieved by starting to tube me again up to 24 oz (of my adjusted formula) each day. Since this means I didn't get to control my feeds, I dropped off my oral feeding. I was down to taking less than 10 oz of formula a day and eating 1-2 pieces of dry crunchy snacks. My parents again had the discussion of trying to wean me. Mommy was successful in convincing Daddy to go along with this plan... So....
Fast forward to this week:
I have accepted all my sippy's (mixed with TV and without TV), amounting to 18-24 oz a day of formula (orally!). I have started to enjoy eating mini-go (yogurt) again, however this is best served on the kitchen floor where I can control my anxiety (by going directly to it, or backing away from it).
I have been tube free for 8 days! (the tube is still attached, and is being used strictly for water).
My Goal: PEGasaurus removaurus
Medical Updates:
We visited Dr. Tarnopolsky at McMaster for my followup. He said I am doing really well and that I can see him once a year now!
My parents took me to my dietician (Lynn) to have me placed on my digital throne of judgement. Breath was held!..... 22 lbs! (and if we use the old American growth chart I am at the 15th percentile!) However, if we use the new one that was adjusted for all the fat kids I am at the 5th percentile! (Lynn is using the old one! Yay me!).
She even said that my parents can cut back on the caloric intake for me, as I did well with my weight gain over the past couple months.
My Goal: To not lose weight
School:
Daycare is going well. The ladies always comment on how happy I am during the day. I continue to eat my dry crunchy foods (and even added graham crackers and oatmeal raisin cookies there). We learned recently that my sippy cup went AWOL and was replaced by an imposter! This will be rectified effective tomorrow in hopes that I start accepting my sippys at school again.
My Goal: Accept my sippy at daycare
Odds and Ends:
1) Christmas: I met Santa for the second time in my life, and I am still not scared of him. He did bring me a Mickey Mouse Clubhouse afterall!
2) I love playing the Piano at Grandma and Grandpa's! I am actually quite good at finger placement, I may start saving up for lessons!
3) I hate pants. None of them fit me... all these fat kids never think about the small kids! I either have pants that stay up but barely clear my knees, or pants that fall to my ankles but the length is fine. ARG!
My Goal: Create the Ethan Reimer "Average height and small waist" clothing line. (Working on the logo)
Administration
And what report would this be without a section about administration....
Dave (my infant development rep) was discharged when I turned the ripe old age of 18months. He has been replaced by a SNAP referral at my school who looks at me every once in a while and writes in her binder.
P.S. I was Spiderman for Halloween!
Physiotherapy:
Now I can basically cross a room, however I need to be enticed by a reward and also be able to end in Mommy or Daddy's arms still.
My Goals: Bearcrawl up the ramp, squat, stand on my own and walk on my own.
Texture Therapy:
I have attended 3 sessions at Blue Balloon, since we last spoke. My homework has been body compressions and face petting towards my mouth to break through my defenses. So far we have been lax on this homework... My Mommy has sent me to Kidsability with Lori (my OT) to focus on playing with different textures. Lori has introduced me to hand painting (which I do not like, but I love squeezing the bottle of paint onto the paper!). Watching her play with Jello and getting her to put pieces of Jello in dolls eyes! I have also put my farm animals in Jello, and like to clean them off with a damp cloth when they get " Jello dirty"! My favourite game to play with Lori is trying to find the "bugs" in dry lentils!
My Goals: to trust enough textures to start getting my hands in them without feeling distressed.
Speech:
I currently have no words. However, I make sure that my point gets across in other ways!
I finally had my speech assessment at Kidsability where it was noted that my receptive language far surpasses any of my expressive skills. I have been placed on a wait list for this program called "Target Words". This is a once a week for 6 weeks program where my parents get trained in techniques to train me.
My Goals: To speak
Feeding:Over the past 2 months the goal for me has been to put on weight. This was achieved by starting to tube me again up to 24 oz (of my adjusted formula) each day. Since this means I didn't get to control my feeds, I dropped off my oral feeding. I was down to taking less than 10 oz of formula a day and eating 1-2 pieces of dry crunchy snacks. My parents again had the discussion of trying to wean me. Mommy was successful in convincing Daddy to go along with this plan... So....
Fast forward to this week:
I have accepted all my sippy's (mixed with TV and without TV), amounting to 18-24 oz a day of formula (orally!). I have started to enjoy eating mini-go (yogurt) again, however this is best served on the kitchen floor where I can control my anxiety (by going directly to it, or backing away from it).
I have been tube free for 8 days! (the tube is still attached, and is being used strictly for water).
My Goal: PEGasaurus removaurus
Medical Updates:
We visited Dr. Tarnopolsky at McMaster for my followup. He said I am doing really well and that I can see him once a year now!
My parents took me to my dietician (Lynn) to have me placed on my digital throne of judgement. Breath was held!..... 22 lbs! (and if we use the old American growth chart I am at the 15th percentile!) However, if we use the new one that was adjusted for all the fat kids I am at the 5th percentile! (Lynn is using the old one! Yay me!).
She even said that my parents can cut back on the caloric intake for me, as I did well with my weight gain over the past couple months.
My Goal: To not lose weight
School:
Daycare is going well. The ladies always comment on how happy I am during the day. I continue to eat my dry crunchy foods (and even added graham crackers and oatmeal raisin cookies there). We learned recently that my sippy cup went AWOL and was replaced by an imposter! This will be rectified effective tomorrow in hopes that I start accepting my sippys at school again.
My Goal: Accept my sippy at daycare
Odds and Ends:
1) Christmas: I met Santa for the second time in my life, and I am still not scared of him. He did bring me a Mickey Mouse Clubhouse afterall!
2) I love playing the Piano at Grandma and Grandpa's! I am actually quite good at finger placement, I may start saving up for lessons!
3) I hate pants. None of them fit me... all these fat kids never think about the small kids! I either have pants that stay up but barely clear my knees, or pants that fall to my ankles but the length is fine. ARG!
My Goal: Create the Ethan Reimer "Average height and small waist" clothing line. (Working on the logo)
Administration
And what report would this be without a section about administration....
Dave (my infant development rep) was discharged when I turned the ripe old age of 18months. He has been replaced by a SNAP referral at my school who looks at me every once in a while and writes in her binder.
P.S. I was Spiderman for Halloween!
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