Friday 17 February 2012

Revisiting Ethan

Happy Valentines Day!
It's been an up and down, bumpy road for my oral feedings. However, it seems like my swallowing issues are almost nil. Clinically I look fine when I swallow, it's just making my swallow team at Mac believe this without subjecting me to another icky Barium Swallow Test.

I have started to take my sippy cup again over the past few days. I must mention that we have modified the top so the hole is bigger so my formula just rolls into my mouth, as I don't suck. It seems to be working great! I take between 3-4 ounces of formula orally at meal time. I am trying to work up to a full meal which is 7 ounces. I still take about 3 tablespoons of sweet potato for a morning snack, in the afternoon I am more picky and usually take only 3 infant size spoons of banana. Mommy tricked me and got me to eat apples mixed with bananas yesterday, I ate it... We'll see if I do today!

My Kidsability appointments with my PT and OT will be changed to biweekly. At my last appointment, I had better spine position sitting (I wasn't so Quasimodo). However, I have shoulder hiking! Man, I can't catch a break! Shoulder hiking, is exactly what it sounds like. Instead of my rotator cuff rotating to reach up for an object while the shoulder stays stationary, I raise my shoulder with my arm to reach up, the PT says it's because my arm is so heavy for me. As you guys know my shoulders are so weak. Also it was pointed out that my elbows hyperextend when I put pressure on them, because my arms are so weak. Moreso my left as I have been using my right to spin around in circles on my bum. Talking about that, I was content with that for all of maybe a day, now I am as frustrated as ever that I can't move straight!

On that note, I took my first plunge off the kitchen counter this past weekend. My daddy has been working long hours at the office, so I guess he hasn't seen me at my finest on my bum. He turned around for a few seconds to get my formula, and found me on the ground.... Yes folks we have CERAMIC floors in the kitchen. Mommy came running downstairs once she heard daddy yell OMG! She found me on the floor screaming! I had fallen on my side. Daddy picked me up, mommy moved my arms and legs, and checked my head. Everything looked fine, and I am happy to report that I am very pliable!

My mommy has been trying to create a new friendship with another mommy in our library group. She has a son named Theo and he was born on May 3rd! Which happens to be my Grandpy's birthday. We had our first playdate outside of the group and the mommies hit it off, but I of course wasn't making it so easy! Theo is crawling, I am not. Theo kept coming over to me and grabbing my arm wanting to play. I turned so my back was facing everyone and proceeded to try to ignore this child and played with some toys... Theo would make a loud noise and I would cry at him. Like head poke cry! I was in total distress! Do I sound like anyone we know yet? Has to be uncle Brian. Anyway we will try again despite my antics.

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