There are so many things to update you guys on. I have been neglectful in my duties as host of this blog! I must apologize!
We left off starting with my adventures with carrot purée. Well to say it didn't go well would be an understatement. The result was I did not eat anything orally for a full week! Mommy freaked and started giving me Cheerios instead, I love them so much! I was then tricked back into eating my oat cereal. From there banana purée and then sweet potato purée, and rice risks. Mommy has been given the okay to introduce a third purée but she's scared! My sippy cup is going well. I have been taking about 3 ounces in a sitting for the last couple days.
How am I dealing with so much food all the time! My parents have dropped another feeding, so now I get formula 4 times a day and snacks of 2-3 teaspoons of purée in between. I eat sooooo much! I get weighed next week so we'll find out how much of a little big man I am.
I am frequently seen with my fingers in my mouth as I cut my first tooth on January 3rd, and my second came through today! Mommy was hoping that all my teeth would come in at the same time. Silly, silly lady.
My CCAC nurse was discharged this week. No more home visits for me!
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| Nurse Michelle |
My last PT session with Cathy was 3 weeks ago she did the AIMS for my 8th month assessment. I scored between the 25th-50th percentile. She said I was closer to the top of this range! The AIMS if you remember is a scale which is used to assess an infants gross motor skills and the 50% mark is an average kid's score.
I started Kidsability a week later for physio and occupational therapy. I will be going there every Wednesday until the end of February, where I will receive another assessment to evaluate the frequency of my visits. My new therapists are Pam and Laurie (not to be confused with my speech therapist Laurie)
Both were impressed with my progression since the last time they saw me.
They understand my hatred of my tummy, so my exercises will focus more on my knees! Yay!
Today marked another visit to McMaster to meet with Dr. Tarnopolski. He gave us my Carnitine level results and apparently I'm "saturated". Dr T assessed my progress and was pleased that I was sitting so well, making noise, and showing signs of stranger anxiety. He gave dad the go ahead to reduce my Carnitine by half and my vitamin C entirely over the next few weeks.
The discussion moved from medications to hypotheses regarding my genetic make up. Dr. T confirmed that my mom was born with and has the same genetic condition that I do. Obviously the symptoms were less severe in my mommy. Dr T surmised that the symptoms could be mitigated by the presence of estrogen or the double X chromosome that mommies have. It could also be more severe in my case due to an interaction between my mommy and daddy's DNA. Lots of possibilities!
We finished up with Dr T and cruised down to the cafeteria for a quick lunch. Mom grabbed some hot water and warmed up my food and dad poured five ounces in my sippy cup. I was soooooo excited that I polished that off in no time! Dad filled up another ounce and after a quick break I downed that too! Yes, you read that right! I ate six ounces IN MY MOUTH!!!!
Looking forward to more yum yum my tum tum!
Bye for now.
